So, for our family and friends, here's our holiday guide to Autism.
Charlie thrives on routine. The hectic holiday schedule can get to be a bit much. If we turn down an invitation to a party or a gathering, please don't take it personally. It just means we've already over-extended ourselves. We try and keep our schedule fairly low key during the holidays, but sometimes it can't be helped when we have as much family as we do. Loud noises make him regress so don't be surprised if we need to go to a quiet part of the house to regroup.
If we're coming to your house for a gathering, be advised we will be calling you before we come to ensure Sunny is allowed to accompany us. You see, Charlie has come to rely on Sunny every day for various things. So when we ask if it's ok that Sunny comes along, we're talking about being in your house, being next to Charlie- not kept outside waiting or in the garage. She does no good for him if she's not within reach. And if you're not ok with that, that's fine, we understand. Just know we may not be able to come, may not be able to stay long if we do come, or only a few members of our family will attend. The part people don't see is the transition home after being at someone else's house for the afternoon or evening. These transitions are earth shattering for Charlie and Sunny helps with those transitions immensely.
Charlie can be very tactile in his senses. Meaning, he likes to use his hands and fingers to see things even though his eyes work just fine. It's ok to ask him not to touch things that might be important or breakable. It's also ok for you to put them away if that makes it easier.
Actually, all of Charlie's senses can be heightened, especially when he's in an unfamiliar place or already overwhelmed. That means noises seem loud to him, lights are bright, smells are strong and food may be overpowering. And speaking of eating. Be aware it may make Charlie calmer to be able to get off his chair when he's eating and move around. Don't worry, we won't let him eat somewhere in the house where food isn't allowed, but he may need to move around a bit and it
Transitions are hard (I feel like I've mentioned that before). It's something that most people don't think about, but for Charlie it's really difficult to move from one big thing to the next. Sometimes something as simple as moving from upstairs in our house to downstairs for a different activity can be tough. So if it takes Charlie a little longer to join us for dessert, to play a game, or to get ready to leave, it's completely typical. Just be patient please.
And sometimes we need to leave earlier than planned. If this happens, don't ask if we're sure we need to leave or ask us to stay a little longer. With autism, we don't measure time in hours or minutes like most people. Instead we measure time in meltdowns, sensory overload and lack of routine. It just means Charlie needs to get back to familiar. We need to get back to routine.
Our family is wishing all of you a very happy Christmas/Holiday season!
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