Vacation Practice

With our son Charlie, we find ourselves practicing a lot of things with him to make certain tasks more familiar, more commonplace so these tasks aren't so overwhelming for him.  And last weekend we practiced something BIG.  We had an amazing opportunity to practice traveling by plane.  Air travel is definitely not something we have done with the boys, but we'd like to be able to do this in the future.  And we want to be as prepared as possible when that time comes.

A couple months ago we were told about a program that the Minneapolis airport does each month in partnership with different agencies in the Twin Cities that allow Autism families to have an airport experience and allow the kids to see what it is like to go to the airport and travel by plane (the plane you board doesn't leave the ground).  The program is free and families can participate as many times as they'd like.  The program starts with families checking in and meeting their volunteer/leader.  Each family has their own personal volunteer for the duration of the visit to the airport.  This, alone, was so great.  The boys were first given social story cards on a lanyard so they could easily see what to expect on each step of our adventure. This was brilliant!!

The volunteer started out by taking us to security where we had our own personal TSA agent to guide us through the security process.  They were really great with the boys and made the whole process really smooth.  We got to see how they handle service dogs through security as well.  Sunny did well going through the metal detector and nothing seemed to phase her.

Once through security our volunteer, Peg, showed us where the observation deck was located.  This is a small tower that anyone can go into and watch the airplanes land and take off.  It's a small, quiet space for anyone with long layovers to relax.  Also a perfect spot for any kiddo with sensory issues who find the airport overwhelming or loud.  The boys were able to see a plane land while we were in there!

After the observation deck we made our way to the gate where we would board our plane.  The boys LOVED the moving sidewalks and thought they were even cooler than escalators, which, up until Saturday, was the most fun thing you could ever ride on.

We got to our gate a few minutes early and the boys were able to meet the pilot who would help us on the plane.  We found out this pilot has a 17 year old son with Autism and was a wealth of knowledge for all the families in attendance.

Just before we boarded the plane, one of the flight attendants got on the intercom and made a pre-boarding announcement just like they would for any regular flight.  She announced we'd be taking a trip to Funville, USA and at that time the pilot also gave some background on the Navigating MSP program.  The boys were super patient and did a great job waiting.

Once inside the plane we found our seats.  The boys each fastened their seatbelt and looked at the information cards in the seat-backs in front of them.  We quickly learned just how big Sunny is and that we need to work on getting her to tuck as tightly as possible in order to fit beneath the seat in front of us.

The boys did musical chairs at one point and found where they were most comfy.  While we were aboard the plane, the plane stayed where it was.  This was a way for each family to see what the process is like and get their special needs kids more acquainted with the process and what to expect.  The pilot again spoke to the group and gave tips on flying with their kids and different aspects to keep in mind.  The nerd in me wished I'd had a pen and paper to take notes, but luckily I could jot a few reminders in my phone.  The pilot gave some great pointers on things to do to prepare for your trip as well as some tips to keep in mind during the actual flight.

We tried to keep Charlie  busy while the pilot talked.....

....but he started getting a little overwhelmed

And then one of the highlights of the day (ok, maybe one of Mom's highlights of the day)- the boys got to tour the cockpit of the airplane!  I think they were a little in awe of it all because they were pretty quiet.  And if you know our boys, you know quiet isn't something that happens a lot!

I think they're impressed

While we were in the cockpit, the pilot offered to talk with us at the end and give us some pointers on flying with a service dog.  We totally took him up on that offer.  We got off the plane and waited for the pilot in the boarding area.  The boys were surprised with a huge bag full of goodies supplied by the Navigating MSP program and it's partners.  In the bag were stuffed airplanes, coloring books, a snack, bottled water, stress balls, wooden planes to assemble and play with, and stuffed bears.  They were also given certificates that says they're ready to fly and wings to pin on their shirts.  By this time the boys were getting a little tired and restless so these goodies were given at the perfect time to distract them.  When the pilot was done he gladly walked with us as we made our way out of the airport.  He gave us invaluable tips on traveling with Sunny and things to do before any trips to the airport that will make our airport experience a breeze.  I could have hugged this pilot for being so generous with his time and experience.

As we made our way out of the airport there was one more stop we had to check out before leaving for the day....

....the indoor doggie potty area.  We found out most larger airports have these available for service animals so we thought we'd check it out and let Sunny explore.  They even had a fake fire hydrant to make it a little more appealing.  Let's just say Sunny wasn't a fan.


We had a full day, but what an amazing experience this was.  We highly recommend this for any Autism families.  We gained so many tips and the boys all got to see what to expect when we actually go on a flight.  Families can utilize this program as many times as they want to.  Our volunteer advised us to come back again closer to when we know we have a trip planned so it's fresh in Charlie's mind and to ease any anxiety over flying or being at the airport.

Here is the link to the Navigating MSP program for anyone wanting to check it out.  Amazing program, amazing people and wonderful volunteers.
https://www.ausm.org/events/ausm-events/navigating-msp-airport.html

We Came. We Saw. We Conquered.

Let me start by saying that even a year ago, we wouldn't have attempted something like this.  We tried a smaller scale version of this a few weeks ago and had a really good time.  We kicked it up a notch and had an even better time.  We took the boys to Bloomington's new Great Wolf Lodge for a couple days where they have a giant water park.

Before heading to the hotel we stopped at the Mall of America to have Tyler's phone fixed.  We ended up eating lunch there and had to practice patience while waiting for his phone to be ready for pick up.   I can't tell you enough what a difference Sunny makes for Charlie.  We are so entirely grateful for this sweet girl.

Charlie was tired of walking so I stopped with him and Sunny to wait for Tyler, Easton and Christian to go pick up Tyler's phone.  And this was the resulting downtime that was so badly needed for Charlie....right on the floor in the middle of the mall.

"Sunny, I think I see them coming!"

After the mall we went to the hotel, checked-in and hit the waterpark for about 4 hours.  Charlie had Sunny available to him the entire time.  While we were waiting for pizza to be delivered Charlie had a hard time staying regulated and needed a little extra Sunny-Love.  What can I say, we were all tired and hungry.  We all could have used a little extra Sunny-Love!

Charlie and Sunny had some time together in the lobby before heading out together on a hotel walk with Tyler while I stayed with the other boys.  Everyone slept hard to re-charge for another fun day at the waterpark today.  Since we had to check out about the same time the pool opened, we had to bring Sunny into the waterpark area this time while the boys swam (the day before Sunny stayed in our hotel room, secured in her kennel).  She watched the boys carefully as they played.  

Just before leaving, the boys got to have some fun in the arcade and Sunny was right by Charlie's side the entire time.  Even had time for a photo op with the giant Dragon at the hotel!

Tyler and I agree that we totally conquered these last 2 days with our crew and had such an amazing time with the boys.  We are so excited to do more adventures like this more often.  Now we're all home and exhausted.....even Sunny.

It's a tough work being such an amazing girl for Charlie!

This is what Autism can Look Like

We've had a lot of wins lately.  More and more wins each week it seems and we couldn't be more thrilled.  So it's only fitting that a tough day shows up...expected, even.  That's what today was.  A little tougher from the moment everyone woke up.  Charlie had a hard time regulating all day.  Nothing seemed to go right for him.  He had a difficult time vocalizing what he wanted throughout the day which made him go into melt-down mode numerous times today.  Sensory overload with noise didn't help and he tended to keep to himself today when he was regulated.  No matter how much rock climbing, tight hugs, Sunny love or swinging he did- a melt down would follow.  Bed time came and it was like the old days where Charlie just couldn't calm down, became anxious and then went downhill from there.  It's hard to figure out what he needs when 1- most of the time he doesn't know what he needs and 2- he can't vocalize what can help if he can recognize it.  Such a guessing game.  So this was the end result tonight.  This is what Autism can look like: pure exhaustion.  For everyone.  Tomorrow's a new day, friends.

You could tell Sunny wanted him to feel better.  She wanted to be near him and would steal little kisses if she got  a chance.  And when she did deep pressure with Charlie she was focused and wouldn't be deterred from her job.