Pages

Tuesday, February 20, 2018

We Came. We Saw. We Conquered.

Let me start by saying that even a year ago, we wouldn't have attempted something like this.  We tried a smaller scale version of this a few weeks ago and had a really good time.  We kicked it up a notch and had an even better time.  We took the boys to Bloomington's new Great Wolf Lodge for a couple days where they have a giant water park.

Before heading to the hotel we stopped at the Mall of America to have Tyler's phone fixed.  We ended up eating lunch there and had to practice patience while waiting for his phone to be ready for pick up.   I can't tell you enough what a difference Sunny makes for Charlie.  We are so entirely grateful for this sweet girl.

Charlie was tired of walking so I stopped with him and Sunny to wait for Tyler, Easton and Christian to go pick up Tyler's phone.  And this was the resulting downtime that was so badly needed for Charlie....right on the floor in the middle of the mall.



"Sunny, I think I see them coming!"


After the mall we went to the hotel, checked-in and hit the waterpark for about 4 hours.  Charlie had Sunny available to him the entire time.  While we were waiting for pizza to be delivered Charlie had a hard time staying regulated and needed a little extra Sunny-Love.  What can I say, we were all tired and hungry.  We all could have used a little extra Sunny-Love!


Charlie and Sunny had some time together in the lobby before heading out together on a hotel walk with Tyler while I stayed with the other boys.  Everyone slept hard to re-charge for another fun day at the waterpark today.  Since we had to check out about the same time the pool opened, we had to bring Sunny into the waterpark area this time while the boys swam (the day before Sunny stayed in our hotel room, secured in her kennel).  She watched the boys carefully as they played.  


Just before leaving, the boys got to have some fun in the arcade and Sunny was right by Charlie's side the entire time.  Even had time for a photo op with the giant Dragon at the hotel!




Tyler and I agree that we totally conquered these last 2 days with our crew and had such an amazing time with the boys.  We are so excited to do more adventures like this more often.  Now we're all home and exhausted.....even Sunny.

It's a tough work being such an amazing girl for Charlie!






Saturday, February 10, 2018

This is what Autism can Look Like

We've had a lot of wins lately.  More and more wins each week it seems and we couldn't be more thrilled.  So it's only fitting that a tough day shows up...expected, even.  That's what today was.  A little tougher from the moment everyone woke up.  Charlie had a hard time regulating all day.  Nothing seemed to go right for him.  He had a difficult time vocalizing what he wanted throughout the day which made him go into melt-down mode numerous times today.  Sensory overload with noise didn't help and he tended to keep to himself today when he was regulated.  No matter how much rock climbing, tight hugs, Sunny love or swinging he did- a melt down would follow.  Bed time came and it was like the old days where Charlie just couldn't calm down, became anxious and then went downhill from there.  It's hard to figure out what he needs when 1- most of the time he doesn't know what he needs and 2- he can't vocalize what can help if he can recognize it.  Such a guessing game.  So this was the end result tonight.  This is what Autism can look like: pure exhaustion.  For everyone.  Tomorrow's a new day, friends.


You could tell Sunny wanted him to feel better.  She wanted to be near him and would steal little kisses if she got  a chance.  And when she did deep pressure with Charlie she was focused and wouldn't be deterred from her job.